Thursday, May 26, 2011

Ugh, Infections

I'm so exhausted tonight. I feel drained. Driving downtown today to the hospital I had a hard time keeping my eyes open and it was only 9am. You know it's going to be a long day if at 9am you already can't keep yourself awake! So sorry if this post doesn't make sense or is all over the place because my mind is going in a thousand different directions tonight.

Today was Bronson's 3rd and final dose of radiation. He's scheduled for an abdominal ultrasound tomorrow and then again on Monday. The Dr. and team said they expect to see quite a difference in liver size from the one tomorrow to Monday's. I hope they're right! We need some good news really soon.

We found out today that Bronson is septic with an E. Coli infection. Go figure just what we've been hoping and praying wouldn't happen... an infection. He literally has no white blood cell count and an infection right now is very serious because he has nothing to fight it with. He was started on antibiotics yesterday when they first suspected it and then had other ones started today. So we're praying that his white blood cell count all of a sudden increases (he's already on medication to stimulate the production of WBC's), the antibiotics work and the infection goes away. It feels like it's just one thing after another. It's so frustrating. On the bright side, yesterday he started losing fluid! I think in the last 36ish hours he's lost somewhere around 300grams. It may not sound like a lot but it's progress! Now the problem is that his electrolytes are all out of whack because some of the fluid loss was out of his veins and not enough fluid loss interstitially. But at least he's headed in the right direction for fluid loss.

As much as I want to be up at the hospital every waking moment I can it's also nice to be home. Since Bronson has been born I haven't had the opportunity to spend very much time with my daughter. I miss her every day when I'm at the hospital and at night when I'm home with her I miss my little Bronson. It's hard going back and forth back and forth but it can't be forever, right?

Yesterday as I was sitting beside Bronson all of a sudden a bible verse came to my mind. Romans 8:37, "In all things we are more than conquerors through him who loved us." I smiled to myself as I thought of that verse because Bronson will be a conqueror of this cancer. Bronson will beat the odds. That's what I'm believing to happen.

1 comment:

Neuroblastoma Canada said...

I am so very sorry to hear that you have entered into the world of neuroblastoma. You are right, your son with conquer this. My son is fighting neuroblastoma and we are being treated at SickKids (and down in the USA). If you need another NB parent to connect with, please feel free to contact me. We will be admitted on Monday (30th) for chemo.
Take good care of yourself and your family,